Friday, November 16, 2012

Way too Long...

You may think I've abandoned this blog but I haven't!  I'm still here...  I'm 6 weeks post partum this weekend.  It feels like a mix between forever and no time at all.

I know many of you are following Dylan's blog, but I just want to give a quick update for those of you that aren't.

After surgery on Halloween, things were kind of up and down.  Dylan was doing ok, but not great.  He's wasn't progressing in his breathing and it was very frustrating.  So the doctors decided he needed steroids.  They have some risks, but do wonders for the lungs.

They did not disappoint!  Within a week after steroids he was off the ventilator and onto a machine called a SiPAP.  Within a few days of SiPAP, he was trying just high flow Oxygen (like adults get), and now he's on the high flow over half the day!  Amazing progress.

He's also getting noticeably bigger and increasingly interactive.  He even got his first little mini head bath this week.  I'm getting to hold him twice a day, change his diapers, take his stuff : )

Although this is still stressful and not what I had envisioned, I'm doing pretty well (most of the time) and I'm having a lot of fun getting to know my little guy.

If I don't post before then...Happy Thanksgiving!


  1. Thank you for the update! Hang in there - we're rooting for you guys!

  2. So glad he is doing well and starting to breath in 'normal' air. I wish you all the best and can't wait to hear more.

  3. So glad he's doing well after the steroid treatment....I hope he continues to profess in a positive fashion ;)

  4. I'm just glad he's doing well. Go Dylan go!